I am a mom of two kids, my youngest of which (Bryce) was diagnosed with Alagille Syndrome shortly after birth. At 10 months old, he underwent a live liver transplant, with my husband being his live donor. My son’s first year of life was an absolute whirlwind and we were thrown right into the world of rare disease. As I have learned more about ALGS, I was recently given my own diagnosis. I am forever grateful for finding the community of the ALGSA.
Professionally, I have a bachelor’s degree in Special Education, ages 5-21, and a master’s degree in Early Childhood Special Education, birth-8 years of age. I was a classroom teacher for 5 years before working at a non-profit as a Developmental Interventionist where I worked with families of children birth through 3 years of age that had developmental delays. I am looking forward to using my personal experiences and professional knowledge to help raise awareness and support the ALGS community.